Wednesday, December 15, 2010
Autism is not a dirty word
I woke up today to a "conversation" on facebook with a link to a video a Dad made showing how his son was "cured" from autism. The article was wrote by a Dr who did all this magical stuff to "fix" this child.
At the bottom there is a VERY short, VERY edited video of the child who is now 6. In the video of the "cured" child, you can see his shifting his eyes all over, and playing with his fingers. ALL very typical autism traits.
I am REALLY sick of people touting their "cures" and giving parents false hope, and they go and bankrupt themselves paying for these treatments. Sadly we have NO idea what causes autism. Or why some kids are more severe then others. I also do not believe it is an epidemic due to immunizations. The numbers are increasing because we are more aware, and less severe kids (Aspergers syndrome) are being included in those numbers. These are the kids that 20 years ago and so were just "quirky, odd, weird, nerdy,etc" I can say this. I am married to one :) He had no idea he had aspergers until our son was dx at age 22 months. He had learned coping skills to deal with things while he was growing up. We were together for 5 years before I found out he wasn't making actual eye contact with me! He has trained himself to look at peoples months, or forehead. It was actually kinda a relief when he was dx. Now we understand why he kept switching jobs, and a ton of other things he does that I just couldn't understand before.
I came into our marriage with 3 children. None of whom have any signs of autism. Not even a tiny one. They had all their immunizations, they ate crappy junk food, had toys from china which I am sure had lead paint. They are now 20,19,and 16. Still no autism.
I have 3 children with my now husband. They were not immunized, I ate all organic, used only natural cleaning products, cloth diapered, etc. You know all the "right" things. ALL 3 ARE ON THE SPECTRUM!
My husbands grandfather has pretty severe aspergers. He had no idea until our son was dx and we were talking about it. The profile fit him to a T. He managed to live 70+ years just fine. Today he would be counted in the "epidemic", as would my husband.
My husband just met his 3 little brothers for the 1st time 6 months ago. They are 15,13,and 11. Guess what? They all have autism traits! All 3 are now in the process of seeing someone to get dx. This would have never happened had my MIL not came back into my husbands life, and noticed the behaviors comparing them to my husband.
My son was the most severe. I knew at 2 days old something was just not right. He was our 5th child. He screamed ALL THE TIME. Would only let me hold him, and would have raging meltdowns over nothing. He also didn't say a word. NOT A WORD until he was 4. He spun in circles , flapped his hands, and screamed. For YEARS. We got him dx at 22 months. Early intervention at 24 months. He has Early intervention, Speech, and OT. We have never seen a DAN dr. I have never had him detoxed for metal, he eats dairy and gluten on a daily basis.
He is almost 10. He is fully verbal, has friends, can hold a full conversation, goes to cub scouts all by himself, and does pretty typical 10 yo boy stuff. Is he recovered? Cured? NO. I will never say that. Is he better? Higher functioning? YES. He still has a hard time sometimes, he still obsesses on stuff he is interested in, he still is the pickiest eater I have ever seen. But on a regular basis I get asked " Are you sure Corey has autism?" And while that is nice to hear, yes I am positive. Corey will ALWAYS be autistic. It is not bad, or a "dirty word". It is just part of what makes him Corey.
Now my other 2 ASD kids. They are girls. They are very high functioning, and odds are had Corey not been so severe we would never have noticed anything with the girls. Odds are I would have found them "high strung, quirky, etc"
So in this long rambling post I guess what I am trying to say is, instead of selling snake oil, lets work on earlier detection, genetic links, more education, more support groups, MORE FUNDING FOR MORE SERVICES!!! And a whole less blaming.